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Showing posts with label tumor. Show all posts
Showing posts with label tumor. Show all posts

Tuesday, October 17, 2017

So my tumor shrunk

"How did your tumor shrink? What did you do?"



I’ve been getting those questions lately and here is my answer:

What did I do to make it shrink? NOTHING.

Maybe it’s because I’m drinking Reliv Now with LunaRich.

Maybe because of the the turmeric and black pepper capsule that I’m taking.

I don’t know. I really don’t. It really just happened. Last September 11, it was still big and painful and then TAAA-DAAA and then 6 days after, TAAA-DAAA again!!

But this I’m very very very sure of:
GOD made this happen!

No, I'm not irritated because people keep answering these questions. Actually, I'm really so amazed and I want to share it to everyone that's why I am posting it.
____________________

Or maybe, it’s because I am exercising my legs and the tumor lose its weight. Haha. Just kiddin

Friday, October 13, 2017

Suddenly, the tumor on my left leg became smaller & smaller

Wednesday night, when I was exercising with Michelle, I told her that I’m puzzled and a bit confused because the tumor on my left leg seems like it got smaller again but I’m really not sure.



Friday, October 6, 2017

GOD surprised me today!

A very very very AMAZING thing happened tonight!!!!!!



After my kicking exercise, instead of putting down my left leg, I placed my left foot above my right knee; dume-kwatro & when I touched the lower part of my left leg, I WAS SO SURPRISED! I kept saying: “Parang lumiit?!” I was talking about the tumor. It became smaller! It’s still there, but smaller. The best part is, it doesn’t hurt anymore.


A M A Z I N G

And I know and I’m sure that this is all God’s doing.

Why?

During my checkup last May or June (I’m too lazy to check), I told Dr. Lopez about the tumor on my leg that’s getting bigger & painful. He touched it & it was a bit painful and said that it’ll that it’ll be hard to remove it.

A certain brain tumor become aggressive it’ll make my left leg weaker and I was kinda worried that this leg tumor might become bigger and much painful. I was so worried about it but I didn’t tell anyone but God. I didn’t really prayed and asked Him to remove it, make it calmer or make it smaller. I just told Him about it just like how I usually have a conversation with my friends; that’s how I really talk with Him ever since whenever.

I didn’t pray for it but HE GAVE IT TO ME!

Like always, therefore I conclude:
GOD IS IN CONTROL


Tuesday, October 25, 2016

Today should be my 11th birthday. Haha.

October 25, 2005 — it’s my Tita Myrna’s (aunt & godmother) birthday. I was supposed to went upstairs and use the computer to send her an email and greet her a happy birthday but then I suddenly felt very dizzy (servere vertigo) and I can't climb the stairs Vertigo + Severe headache = I passed out and became unconscious..... then DOT DOT DOT


I was rushed to Philippine General Hospital and was admitted there. Thant was the start of my 2-month long hospital stay when my health deteriorated and became weaker and weaker. 11 years ago. Everyone thought I won’t be able to survive; everyone — including the doctors and nurses.

About to die, maybe?

It’s so amazing that from being bedridden and very weak, I feel so great and stronger now.


I may still be in this condition with a lot of limitations, but still. No need to explain further, instead I’ll let my life explain it to you..everyday..as long as the clock is ticking.

Today should be my 11th birthday. Haha.

October 25, 2005 — it’s my Tita Myrna’s (aunt & godmother) birthday. Upon waking up, I sent her a birthday greeting via email and then DOT DOT DOT ……


I was brought to and admitted at Philippine General Hospital. Thant was the start of my 2-month long hospital stay when my health deteriorated and became weaker and weaker. 11 years ago. Everyone thought I won’t be able to survive. Everyone, including the doctors and nurses. About to die, maybe? It’s so amazing that from being bedridden and very weak, I feel so great and stronger.

I may still be in this condition with a lot of limitations, but still. No need to explain further, instead I’ll let my life explain it to you..everyday..as long as the clock is ticking.

Wednesday, June 29, 2016

Cranial Surgery: Success! It was double the awesomeness!

“Lord, please continue doing amazing things in my life. I don’t think I need to tell YOU to make my surgery a success because it will be successful like always, thanks to You!”



I’ve been telling those words to God everyday until I was waiting in the surgery suite, waiting to be transferred in the operating room.

Looks can be deceiving. It's not as painful as it looks

June 17, 2016, 7 am. After a couple of minutes waiting in the surgery suite, I was brought to operating room number 10. This is it! When I already felt like I was about to doze off from being sedated, the last thing in my mind was, “Lord, Ikaw na po ang bahala ha.” (Lord, it’s all up to You)


Before entering the Surgery Suite
And then I woke up. I was in the surgery suite again. The operation was done and I already knew that it was a success. It felt like I had a really good, deep and long sleep. I was asleep for almost 10 hours, that’s why. The surgery took that long huh? It was not only a tumor excision, reconstructive surgery and tarsorrhaphy were also done. Titanium mesh was placed and my right eye lids were partially and temporarily stitched together in order to protect it.


While I was looking at the exit sign in the waiting room (surgery suite) before the operation, I told myself, “Later, after this operation, I will have a clearer vision and that signage will not be too bright and cloudy anymore.” And I was right, the exit sign was clearer!

When they wheeled me out from the surgery suite, I thought I’ll be brought to the ICU and I was so surprised when they wheeled me back to my room instead. I was feeling very fine. It really felt like I just slept in the operating room. No ICU stay? Wow! This is the first.

Nothing was painful. My head was not feeling heavy. I didn’t feel any discomfort. I was as talkative as always. After a few hours or minutes, I asked my mom to give me my mobile phone so that I can see how I look like and then I clicked the camera and took a selfie before sleeping.

Hours after the operation. I was very much okay. I took that selfie by myself. :)

It was a sleeping galore. I didn’t felt like I got weaker, I kept on sleeping so that I won’t think of eating coz it’s NPO (Nil Per Os - nothing by mouth) for me. Haha. My red blood cells were low so I had blood transfusion while I was doing my sleeping escapade.

The following day, I was already on a liquid diet (YES!!!!), soft diet the next day and 3 days after the surgery, I was already back on a regular diet!

With my neurosurgeon, Dr. Willy Lopez

My taste buds, chewing & swallowing didn’t change. I already had a lot of major surgeries and it usually happens but not this time. I had numerous mouth ulcers and even sore throat after a major surgery and I’m so used to it but it didn’t occur this time. I didn’t get a bit weaker. Nothing changed.

Selfie!!!!

The only thing that needs to recover are the scars on my head. So I told myself that when the staple wires on my head are removed, it means I have fully recovered. But I never expected it to happen this fast. 1 week and 4 days after my operation, we went to my neurosurgeon’s clinic for a check-up. We thought that he’ll only remove the stitches on my eyelids, but he removed all the staple wires on my head as well. Wow. It’s already healed. Speedy recovery it is!

Dressing of the wound at home. I was discharged from the hospital 5 days after the operation
My surgery last April 11, 2016 was so amazing and I never thought that greater things are going to happen. Amazing! Amazing! Amazing! Because God is in control, amazing things keeps happening in my life and it gets more and more amazing!

Please don’t idolized me, I am not the one who is doing all these amazing things in my life. Believe me God is really taking over my life. I am not in control, I am God’s instrument. I am letting Him use me. This is all His doing, I don’t want to take all the credit for it.

I am strong because God is the strongest.

I am brave because God is at my back, in front of me, my left-side and right-side, above and below. He is all over me, protecting me.

I always feel so good because God is so great. He is the greatest!

I am able to face these challenges because I am not doing it alone. I am surrounded with awesome people and of course, an awesome God.

I am always ready because God already prepared me before I was born.

I am a fighter because God is with me in all of my battles.

I am a cheerful person because God is always making me happy!

Amazing things are happening in my life because an amazing God is doing it.

"How do you combat all the challenges in your life?This is a question that I often encounter. I always say that my biggest weapon is my faith in God and faith in myself.I have realized though that my faith in people is also important, especially those who are part of my life……”(Excerpt from Being Ready (April 11, 2011)

Thank you. Thank you. Thank you. Thank you for paying with me. Thank you for all your love and support. Thank you for helping me. Thank you for letting God use you and become His instrument to help me. Thank you for being one of my blessings. Thank you mother, father, sister & brother. Thank you Dr. Willy Lopez and the medical team. THANK YOU!!!

“God also knows that we need people to help us and to guide us. He sends mortals from different walks of life to help us in many ways and means. He is so able to show His power and might in doing His part.”

From now on, I will go back to focusing on improving my health and I am claiming that a big improvement will happen to me before the year ends.

When I become better, God can make use of me more!

Fight! Fight! Fight!
Neurofibromatosis is a continuing battle not knowing when another tumor will show up and cause me harm but I am not backing out. I will keep on fighting! God is bigger and stronger than NF!


Saturday, April 30, 2016

Stitched



Breakdown of my stitches:

7 - HEAD
  1. Open-Close Brain Surgery 2005 – 1st major surgery.
  2. VP Shunt 2005 – My head was super painful, I often passed out from the pain, hydrocephalus was already transforming, my head was so stressed from the pain.
  3. Cochlear Implant 2008
  4. Tumor Removal (that’s making my right eye to bulge out) 2011
  5. Immediate Brain Surgery (6cm progressive tumor that’s causing a lot of pressure) 2016
  6. Minor Surgery: Tumor removal in my forehead (thought it was just sebaceous cyst, was not diagnosed with NF yet) 1998
  7. Very minor surgery to close a scar from a rollerblading accident 1996- I fell on the ground & my chin was cut-open.


1 – LEFT ARM: Tumor removal (thought it was just sebaceous cyst, was not diagnosed with NF yet) 1996


1 – LOWER BACK: Tumor removal (thought it was just sebaceous cyst, was not diagnosed with NF yet) 1996 –my left arm was being closed, while my back was being opened. I was was very much awake & I was 12 years old then. That was my first minor surgery.


1 – LEFT RING FINGER: Tumor removal (thought it was just sebaceous cyst, was not diagnosed with NF yet) 1998 – this was done together with my                 forehead minor surgery


3 – STOMACH
  1. Gastrostomy 2006
  2. Feeding tube insertion – Gastrostomy 2006 –Yes, there were 2.
  3. VP Shunt 2005 – there is a tube inside of me from my head going to my stomach to drain the fluids.


1 – RIGHT HAND: A schwannoma near my palm was getting bigger and painful so it has to be removed 2009- I was able to watched the whole procedure and       it was about 20 or 30 minutes.


1 – RIGHT BIG TOE FINGER: Schwannoma removal 2012 – The tumor was so small yet very painful that’s why I had it removed.

TOTAL= 15 Stitches (so far)


-------------------------------------------------------------------------------------
Updat: June 17, 2016

New Total = 18 stitches

– Tumor Removal + Reconstructive surgery

–Tarsorrhaphy

– Ewan ko? Basta kasali sa sugery. Eh may 2 staple wires daw.



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