This is Baby Jon. He is suffering from Hypoxic-ischemic encephalopathy or HIE. According to MedicineNet.com, HIE is damage to cells in the central nervous system (the brain and spinal cord) from inadequate oxygen, thus he need to be hooked to a mechanical ventilator to help him breathe.
Friday, November 12, 2010
Written by my mom..
This was my mom's entry when she nominated me at Cebuana Lhuillier's Happiest Pinoy that made me part of the Top 7 Finalists..
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I was a teenage mom when I had my eldest child, MARIA KATHRINA (Kcat) Lopez Yarza. Kcat was born on Friday the 13th of May 1983. I was in labor pains for more than 10 hours when my doctor finally decided to go with the Ceasarian Secton. Kcat's heart beats was in zero respiration due to the cord coil and she suffered from meconium stain. She was revived and was in an incubator for 3 days. There was a guilt feeling and I really felt so sorry that my first child had to suffer all the pains. This was the time that I realized that I have an obligation that I need to face. Despite, the trials and humiliations that I’ve gone through during my early years of my married life, I felt I must be strong for an innocent child who depends on me. She is truly a gift from God, to love and cherish.
Labels:
cochlear implant,
happiest pinoy,
hEAR,
kcat,
nf2
Wednesday, November 10, 2010
RARE RUN 2010 Ala Eh!
I got this from Pam Mayo-Roman on Facebook..
Calling all families, friends and running enthusiasts! It's time to run, have fun and celebrate with us the birthdays of Julia and Vince through a FUN RUN called RARE RUN ala EH! on Dec 18, 2010.This is a special event that aims to raise funds for the benefit of kids with rare disorders like Vince and Julia. Proceeds will go to the Philippine Society for Orphan Disorders, Inc (PSOD) and Breathe Initiative (BI)
Calling all families, friends and running enthusiasts! It's time to run, have fun and celebrate with us the birthdays of Julia and Vince through a FUN RUN called RARE RUN ala EH! on Dec 18, 2010.This is a special event that aims to raise funds for the benefit of kids with rare disorders like Vince and Julia. Proceeds will go to the Philippine Society for Orphan Disorders, Inc (PSOD) and Breathe Initiative (BI)
Labels:
help,
Osteogenesis Imperfecta,
pray,
Rett syndrome
Monday, November 8, 2010
KCAT CAN: Change Comes Knocking at the Door
Change can only work in two ways – for the better, or for the worst. Yet, regardless of whatever manner in which change comes into our lives, what matters is how we view it and how we react to it. It may be uncomfortable and awkward at first and will have a ripping effect for anybody who refuses to go along with it.
Change Comes Knocking At The Door
by Maria Kathrina Lopez Yarza
November 8, 2010
What is change? Why is change taken and seen as the only permanent and constant thing in life? From conception to death, everything in our lives is ever-moving, ever-changing. Slow and quick, change is the metamorphosis of life. It is no respecter of humans, taking no exception of anyone – including me.
Change Comes Knocking At The Door
by Maria Kathrina Lopez Yarza
November 8, 2010
What is change? Why is change taken and seen as the only permanent and constant thing in life? From conception to death, everything in our lives is ever-moving, ever-changing. Slow and quick, change is the metamorphosis of life. It is no respecter of humans, taking no exception of anyone – including me.
Labels:
KCAT CAN,
manila bulletin
Sunday, November 7, 2010
Thursday, November 4, 2010
Monday, November 1, 2010
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