Living in pain but living a beautiful and awesome life!

I often have sudden nerve pain on my head; but I still feel so blessed because before I can even react and say “ouch”, it’s already gone. That happens every 20 minutes and lasts for an hour or even the whole day, but each prick/pain is only a second or less.

Headaches are becoming frequent these days, as in almost everyday; but I still feel so blessed because all the pain I’m feeling are always tolerable.

image from google

Wagyu Wonderful Lunch at Melo's!

Just because I’m sick (and currently has 3 aggressive bad tumors) doesn’t mean I can’t go out and eat good food. I’m a lakwatserang naka-wheelchair once again…

Thanks to Ma’am Caron Santiago Macasaet (owner, together with her husband, Sir Paul) for inviting us, Talitha and I had a really wonderful Wagyu Steak Lunch at Melo’s last week (Wednesday)!

How caring are you?

A couple of my concerned friends told me about GoFundME, YouSharing and other Crowdfunding sites. When they told me about it, I refused and said there’s really no need for it coz it’s not like I’m raising funds for a much needed medical procedure like surgery or something. I’m continuously doing a fundraising campaign to sustain my recurring medical needs; NF is a continuing battle. Besides, there are a lot of people who needs more help compared to me. I didn’t want to put up a fundraising page then, but I considered and told myself that if I really need to raise a big amount for my surgery, I’ll make one.

Please don’t feel obliged to give. Share only if you can and I’ll sincerely appreciate it. You can buy a shirt from me. May tshirt ka na, nakatulong ka pa at may chance ka pang maka-inspire ng kung sino mang babasa ng nakasulat sa shirt mo! Haha. Praying for me is helping too. I really feel comforted and more at ease whenever someone tells me that they’re praying for me.

http://www.youcaring.com/kcatumors

Anyway, here’s my youcaring page, I tried creating a gofundme page but they  don’t accept Paypal. We have a dollar account but my mom’s not sure if it’s still active. Time is moving and we still have a lot of things to do, so I'll use my Paypal at youcaring site instead.

Please read:
3 bad tumors: Please help me shoo them away!

3 bad tumors: Please help me shoo them away!

  

MRI scan results are out and it’s 3 pages long! Meningioma. Schwannomas. Lesions. Mass. Soft tissue. Irregular. Abnormal enhancement. Definite progression. Tumors, tumors and more tumors all over my cranial MRI. Aside from the 4cm big bad brain tumor, there are also tumors on my optical wall (on each side) that needs to be treated. That’s 3 bad tumors! Hopefully the other tumors will remain small and behave forever!

It’s Hypofractionated Stereotactic Radiation Therapy (SRT) times two that costs Php 593,450.00  and we need to raise it within this month.

Here’s the copy of the estimated price quotation we got from Medical City (the only hospital in the country that has this kind of treatment) – the red marks are the discount.

Here’s the plan according to Dr. Vega (radiation oncologist):