Lace Up for Anika

A ‘unity run’ organized by Team Breathe Hope along with Breathe Hope Runners to help save a toddler’s heart and give her a brighter life.

Walk, Roll & Run for Rett

Take time to read this letter that I got a few days ago from Ate Pam Roman, the mother of Julia who is suffering from Rett syndrome:

Dear Friends,

As you know, our daughter Julia has Rett Syndrome, a devastating neurological condition which is still unknown to so many.  Over the years, you have seen me advocate for her. Last year we started a  support group called Rett Syndrome Philippines to bring Rett families together, provide support and advocate for all the girls and women with Rett Syndrome. Rett Phils. is a member of The Philippine Society for Orphan DIsoders, Inc (PSOD), a non-stock, non-profit organization dedicated to help kids with rare disorders. Rett Phils. is not a big group to attract potential sponsors and fundraisers. Yet every day, more and more people are coming forward to help us make a difference in the lives of our girls.