1st Wednesday of the month/year

It's the 1st Wednesday of the month yesterday.. So we went to Megamall for Fr. Joey Faller's healing mass.. I've been attending it since July 2007.. When I'm free every 1st Wednesday of the month, I make it to a point to attend Fr. Faller's healing mass.. I can't hear what's going on, though sometimes my mom states to me the important words Fr. Faller mentions during his homily.. I can't hear the mass.. But I'm praying with Fr. Faller.. I'm praying with everyone inside the chapel.. and he prays for me, for us.. Join forces ang lahat.. :)

Epal ako!

i am cleaning my 'bookmarks folder' when i saw this.. super research kasi kami ng mom ko about ABI not so long ago.. next time ako naman babasahin nyo.. feeling!!! :P hahaha!

wala lang.. epal lang.. i wanna post the url lang kasi i'll delete it na.. remembrance ba.. :P

March 10.. Gimme Money! :P

mark your calendars.. my tentative schedule for surgery given by my dr. is march 10.. grabe! it's so near na.. it's still tentative though.. we'll still finalize everything on the coming days.. i'm just so happy that my surgery has a scheduled (tentative nga!) date already.. dun na rin punta non.. :P dra. chiong even ordered her secretary to book the operating room on march 10.. ang saya diba? and yes! i'll be having cochlear implant! woohoo! my hearing tests are all positive.. i would benefit from CI! i was really rooting for ABI since CI won't work on deaf NF2 patients like me, that's why ABI was born.. basta just google it nalang to understand it clearly.. :P basta it means, i won't be having another open brain surgery.. galing diba?

CI vs. ABI

from www.pubmed.gov:

Neurofibromatosis type 2 (NF2) causes bilateral hearing loss due to tumour growth in the cerebellopontine angle. We report the results of promontory testing and transtympanic electrocochleography on subjects with deafness due to NF2 referred for an auditory brainstem implant. All 19 ears tested revealed loss of cochlear microphonics. Nine ears (mainly without previous treatment) revealed auditory perception during promontory stimulation, indicating cochlear deafness. One of these subjects has been successfully provided with a cochlear implant. The other 10 ears (mainly after previous surgery) revealed negative promontory stimulation, indicating additional retrocochlear deafness. These findings indicate that neurofibromas initially cause a cochlear deafness, so that a cochlear implant can be used if the auditory nerve can be preserved. This option has to be considered in rehabilitating patients with bilateral tumours due to NF2.

btw, i'll be the first filipino (asian actually.. hihi) nf2 patient to receive a cochlear implant coz normally, it's ABI.. :)

I bought a cake!

i had my electroaudiometry (promontory) test this morning.. it will define what device would be use, is itcochlear implant or ABI.. few years ago, my doctors told me that cochlear won't work for an NF2 patient like me.. true! but i never lose hope.. i know i'll be able to hear again.. not that i haven't accepted the fact that i'm deaf and it can be forever.. but there's still hope.. ah basta! and then i read about ABI (aditory brainstem implant).. and as they say, the rest is history.. hahaha. i was sooo happy.. as in!

hEAR

here's the copy of the letter/essay(?) i attached inside the plastic of every shirts i'm selling.. togother with the thank you note.. :)

I have NEUROFIBROMATOSIS TYPE 2 (NF2). I have brain tumors. I was normal until my disease got into me. Now, my left extremities are weak, I can’t move my left arm and hand, my left foot won’t move and my left leg is weak. I can’t walk. My right face is numb and my facial muscles won’t move. I can’t swallow well, I have a blurry vision, I can’t smile and most of all, I’M DEAF.