Thursday, January 5, 2017

NDREI: THE LITTLE WARRIOR who I love

I love NDREI so much!
(Migraine aura is preventing me in finding our last picture together, I have a picture of him in my heart though.)

I wrote about Ndrei Riña in 2014. And I became friends with Ndrei & her mom, Rubi (along with Ndrei’s 2 younger siblings, Eli and Sam). I really admired Ndrei’s Faith in God. Yes, I have a very big FAITH IN GOD and that’s the reason part of the reason why I am amazed with him. A very young boy who is battling a chronic illness is able to have that big and strong Faith. He is still very very cheerful and very positive child despite everything.

And then on September 2016, Ndrei died.

He lost the battle with Liver Disease, but he was able to touch a lot of lives and helped them gain something (a lot of things) from life.

Ndrei may have been gone, but the film NDREI: THE LITTLE WARRIOR IS BORN!

Mommy Rubi shared Ndrei’s amazing, inspirational and touching story and made the script. They were able to start and produce the film by using all that was left o NDrei’s previous medical funds.

Through this film, they’ll be able to share Ndrei’s very inspiring and touching story while raising awareness about the struggles of persons with a deadly Liver Disease, especially on children and how their family and love ones lives with it.

At the same time, the proceeds of this film will benefit a couple of children with Liver Disease (Biliary Atresia).

The film is already completed and fully done.

They need to raise more funds so that they can be able to do a premiere showing of the film so that the MTRCB can be able to review it and that everyone can watch how inspiring Ndrei’s life was by having it shown in cinemas and schools Nationwide.

Sunday, December 25, 2016

Christmas Special

The last thing on my “to-do-list” this year was to make Christmas (and New Year) gift tags. Despite the migraine aura, I was able to accomplish it and I was all done in less than an hour that leaves me to do nothing but stare on my computer and surf the net. And then I suddenly had a light bulb moment.




I remembered the video that I saw on Facebook a few days ago. This Christmas, what will you choose? To receive something special or to give something to someone special? And I am choosing both.

I really had nothing worthwhile to do so I also made a gift tag for my friends I would see the name on my notifications. Those who liked or commented on my posts (Even though it’s not a bit related to the Christmas gift tag. Haha.) I also checked my friends list chose to include those familiar names. Yes, I was that bored. I was also determined. I really want to do this. I just want to. A couple of days ago, I have decided that if I want to do something and I can do it by myself, I will definitely push through with it and if it’s something that I need to depend much on other people, I will think about it first.

I wanted to make my friends feel special and this Christmas Project is very simple and with God’s help, I can do this by myself and it was a succes

My Christmas Project may be just mere images and a simple Christmas greetings but it has a lot of things in it. I didn’t use any app or generator for it and every photo that I made came with my effort, my sincerity, my love and my prayers. Of course, prayers are included because as we all know, Jesus is the reason for this season, right?




I feel so fulfilled once again because I have greeted 500+ persons a Merry Christmas and I did it one by one and I hope that I made them feel special in a way.
It was so amazing that I wasn’t a bit tired from doing it, in fact I feel so great because I did it and I was able to do all of it by myself in my own little way.

For the pepeople that I wasn’t able to give a gift tag to, I just wasn’t able to make you one. That’s all. YOU ARE STILL VERY VERY SPECIAL and Jesus was born for YOU.

Let’s make our friends and love ones feel special. It doesn’t need to be something big or something grand. We can do it in our own little and simple ways. Not only this Christmas but always.

 MERRY CHRISTMAS TO YOU




Monday, November 7, 2016

Our scars will make us a stronger person.

I was reminded of the word “scarface” and then I giggled and immediately wrote this on my Facebook wall:


And then my Malaysian friend, YL shared with me something Keisha wrote about dealing with NF2 and surgery scars, this was from her last public speech before she passed away in 2014 and here it is:

"I have a genetic condition called NF2. Basically, tumors grow throughout my nervous system, and every time I have sought treatment, I come out of the operating room with a new scar - a souvenir to remind me of a hard-fought battle for survival.

I do not see reason to consider these scars a disfigurement of my body. Rather, I choose to see them a testament of how trials and adversity can unite the human spirit. Out of tragedy, my family, doctors, nurses, physiotherapists, caregivers and friends have united time and again to shine forth with the ultimate good within humankind. This is the story behind each and every scar on my body - of a unity of care and love turning tragedy into triumph.

In overcoming danger and earning the scars, I have found true strength, true character true faith and true love."

—Keisha Petrus (1989-2014)

Though I wasn’t able to meet Keisha when she was still alive, it's like I already did and I’m so inspired by her. Thanks to YL that I got to read her previous writings.

“My duels with NF2 have left me scarred, wheelchair bound and deaf! As bleak as that sounds, my life doesn’t revolve around the hospital. I have never let NF2 stop me from living my life. To the contrary, I have allowed my condition to provide me opportunities to broaden my horizons, challenge my faith and test my character. So instead of wallowing in self-pity, I embrace adversity to bring out the best in me and overcome the obstacles in my life. Thanks to my condition, I’ve been able to experience the world in a way few people get to see. The fragility of life inspires me to live to the fullest."
— Keisha Petrus (1989-2014)

It’s so amazing that we have the same outlook in life. WOW. WOW. WOW.



While I was about to write this blog post, YL commented on the status that I posted in Facebook with Keisha’s peice. 

Maybe, God eavesdropped on what I was thinking again and HE learned about the topic I’m planning to write & asked Keisha to whisper to YL for him to share that certain writing / speech that she wrote back in April 2014 that I posted above.

I also love this poem written by Keisha:

I Am Wearin' My Skin
Poem by Keisha Petrus

My message stands tall with pride and grace, 
My words in good time shall be like wind, 
Brace yourself dear friend, let the breeze propel you, 
Trust in my mission, and you will be free to live life’s embrace.

I once was swayed by aesthetic charm, 
Beautiful hair, beautiful eyes, beautiful body, 
I sweat, I sought, I fought, 
To no avail did I reach my Envy.

Lost a few pounds, strapped on my heels, 
No more laughter, no more tears.
But my heart knew better, I lacked content, 
I yearned, I cried, I prayed for something more than this.

My pleas were answered, my life put in perspective, 
Those blossoming belles bore nothing, 
Instead engrossed in hopeless insecurity, indeed highly defective, 
A hidden image behind a mirror, a roamer’s reflection.

Loving myself is more important than ridding my blemishes, 
As women come in many shapes and sizes.
I spend my time now in helping others, 
I am wearin’ my skin, no more empty and foolish disguises.

Tuesday, October 25, 2016

Today should be my 11th birthday. Haha.

October 25, 2005 — it’s my Tita Myrna’s (aunt & godmother) birthday. I was supposed to went upstairs and use the computer to send her an email and greet her a happy birthday but then I suddenly felt very dizzy (servere vertigo) and I can't climb the stairs Vertigo + Severe headache = I passed out and became unconscious..... then DOT DOT DOT


I was brought to and admitted at Philippine General Hospital. Thant was the start of my 2-month long hospital stay when my health deteriorated and became weaker and weaker. 11 years ago. Everyone thought I won’t be able to survive. Everyone, including the doctors and nurses. About to die, maybe? It’s so amazing that from being bedridden and very weak, I feel so great and stronger.

I may still be in this condition with a lot of limitations, but still. No need to explain further, instead I’ll let my life explain it to you..everyday..as long as the clock is ticking.

Today should be my 11th birthday. Haha.

October 25, 2005 — it’s my Tita Myrna’s (aunt & godmother) birthday. Upon waking up, I sent her a birthday greeting via email and then DOT DOT DOT ……


I was brought to and admitted at Philippine General Hospital. Thant was the start of my 2-month long hospital stay when my health deteriorated and became weaker and weaker. 11 years ago. Everyone thought I won’t be able to survive. Everyone, including the doctors and nurses. About to die, maybe? It’s so amazing that from being bedridden and very weak, I feel so great and stronger.

I may still be in this condition with a lot of limitations, but still. No need to explain further, instead I’ll let my life explain it to you..everyday..as long as the clock is ticking.

Monday, October 17, 2016

KCAT CAN eBook? Yes.

Wanna read this book on your reading devices or your computer? YOU CAN!
You can buy KCAT CAN: I have a pen that writes in eBook (PDF) format for $10 and pay via PayPal.

PayPal email:
kcatyarza@yahoo.com

ORDER HERE

You can also send an email to me@kcatyarza.com

Let’s inspire each other!

Tuesday, September 6, 2016

I dunno what title to put, it's just so amazing!

Last Friday, while I was waiting to be prayed over by Fr. Joey Faller after the healing mass, something suddenly pop out of my mind that made me say, “Thank you, thank you so very much, Lord.” I kept on thanking God until it was already my turn & Fr. Joey placed his hand over my head.

Back in late 2005, when I was confined in the hospital for 2 month and my health deteriorated. Most of you know that I became so weak then. Very very weak. It was really hard to move on my own. Even when I want to roll on the bed and change my sleeping position, someone has to do it for me.

Back then, I would often close my eyes and imagine myself getting better and kept telling God. “Please heal me. Please. Please. Please. If You do, I promise to pay You back by sharing your words through my own words , with my own life."

***TEARS OF JOY***

 I was discharged from the hospital but even if I am already home, I still kept pleading to God especially when I had an anxiety attack in Holy Week 2006.

And then last Friday, I just realized that God has been answering me since the day after Holy Week 2006.  

I keep on stopping while writing this because it’s just so amazing! I feel like crying and thanks Him again for not letting me cry coz I might hyperventilate. I even don’t feel like there’s a lump on my throat. Thank you, thank you Lord.

And wait, there’s more!

During a conversation with someone, I got to remember this…


 AMAZING! AMAZING! AMAZING! I don’t know what else to say. It is really so amazing!!!

And now, God made my words to Him when I was lying in the hospital bed in 2005 become a reality. ANG GALING GALING TALAGA!

Tuesday, August 9, 2016

NF Amici (NF Friends)


Sunday is family day & I spent the 1st Sunday of August with some of my NFF family.


I’ve been meaning to invite these friends for a meal and thank God, I was able to make it happen. I often chat and talk with them; some I even talk to almost 24/7. They even accompany me and won’t leave me behind online whenever I’m all by myself at home (binabantayan daw ako) and I’m super touched. While they would often tell me me how I’ve helped and inspired them, they helped and inspire me as well. They often make me smile and laugh too.



Last Sunday I met up with my NF friends for a pizza & pasta lunch date at Amici in Megamall. Good food + Great Friends = Awesome!

  

   

 

After showing off my head (sira ulo hahaha) and how my left fingers and my left foot moves, I discovered a new improvement with my left foot. Those improvements may only seem trivial, but it really means a lot. Showing-off my the “my tricks” is my way of telling people that I really can’t but I CAN, so whatever you are going through, never give up. As long as you try, YOU CAN do it too. I’ll make a separate post about this…soon.


Amici means friends in Italian. We are NF Amici!


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