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Thursday, August 10, 2017

TAYO TAYO

NEW LEVEL UNLOCKED

Last night, I felt so lazy again to do my exercise. I AM A LAZY PERSON. Really. I reasoned out to Michelle that the weather is so hot and I had a mild headache that day. Though I was already fine. Everything has a reason and when we are lazy, we can easily come up with reasons and excuses, right? I always fo that so I know.  Haha. And then while we were talking, I told her that I think I can stand on my own, I just need to lean my lower leg & knees on the bed. I think I can do it. And then I got curious.

Sunday, May 14, 2017

May 13 is Kcat’s Birthday and then May 14 is Mother’s Day

May 13 came once again. I was happy because of course it means 34 years of life, but at the same time, I was a bit sad because it will be the first time in 34 years that my mom won’t greet me personally on my birthday cox she is admitted in the hospital (that’s what I really wanted for her though).

Saturday, May 13, 2017

Wanna know my birthday wish?


“Most of us consider our birthdays as a significant and meaningful event in our lives. We celebrate it in different ways, but what is important is that we have to be thankful because it is the day that we had been given our precious life here on earth. We have to live through the days, months, and years in spite and despite all the events in our lives.

Having another birthday means a new day is waiting for us to experience life. We may be a year older, but we definitely grow wiser and stronger.”

(28 years – May 23, 2011)

Thursday, May 11, 2017

Why are you not 100% PWD-friendly, Circuit Makati? WHY?


Dear Circuit Makati,

I’ve been hearing (reading, technically, for I am deaf) a lot of good things about you – good online reviews and positive feedback from family and friends. To celebrate my dad’s birthday, we wanted to try a different place. As I went out of the car, the view from the parking was nice – it was spacious and well-lit in the evening. I was excited! There was even a designated PWD parking slot. But for a little while, I WAS STUCK. There was no pathway for my wheelchair to access the mall - NO RAMPS IN SIGHT AND BIG HEAVY PLANT POTS FENCED ONE SIDE. So, HOW? How do I get to the mall? How do I get out of the parking lot?  Fortunately, kuya guard willingly helped when asked (Thank you). He moved the pot to give enough space for me to pass.

Saturday, May 6, 2017

Stepping up to show compassion by Tan Yi Liang

My story was featured by my awesome journalist friend (who keeps on refusing to believe that he's awesome...everyone that I call "my friend' is awesome, y'know). He is a Malaysian.

You can read this beautiful & inspiring article here: Stepping up to show compassion by Tan Yi Liang.

Will there be a MAY BIRTHDAY PROJECT?

The answer is: NO

Monday, May 1, 2017

MAY IS NEUROFIBROMATOSIS (NF) AWARENESS MONTH


When we are aware about something, we start caring about that something and because of caring, great things can happen; small and big things.

I made an NF AWARENESS Twibbon that can be used by anyone and everyone – with and without NF. Use this and show your support. It may be a simple and trivial thing to do but this little thing ban bring us closer to greater things.

https://twibbon.com/Support/nf-awareness-month-2
Know all about NF and share the information to at least one person. In this way, we can make NF known and increase the possibility of finding a cure for it.

Be aware about NF and show everyone that you care.

Please visit our page:
NEUROFIBROMATOSIS FRIENDS (Philippines)

Monday, April 17, 2017

A beautiful miracle happened to me 11 years ago

April 17, 2006. Just like today, it was the Monday after Easter Sunday and that Monday from 11 years ago means so much to me.
It all started during Lenten Season in 2006. Everything dawn on me. I am so weak. I look very much different from a couple of months before. I am totally deaf. I can’t walk. I can’t chew and swallow properly. Etc. Etc. Etc. Etc. Etc. It felt like everything and everyone is moving with time and I was already left behind. I was sad. I had a hard time sleeping. It was an anxiety attack. It felt like I was already going to die because of my condition that time. I kept telling myself that’s It’s alright. 22 years (I was 22 years old then) is already enough.

But what really comforted me were all the bible verses and prayers that were posted on the wall beside my bed. I didn’t talk that much and the only One who I talk comfortably with was God. I’m just so used to talking to Him like how I talk with the people who are close to me. Since I don’t need to put much effort talking to Him and I won’t get tired. I don’t need to use any of my weak strength. All I had to do was think. Everything that I think about was passed on to Him so I don’t really keep everything to myself.

Holy Week 2006. I felt worse and worse and worse. I kept saying, “I’m going insane. I’m going insane.” I don’t understand what’s happening to me and to me, it really felt like going insane. That time, I just don’t understand. It was like an Angel versus Devil scenario in my mind. The one that we watch & read. The angel versus the devil. Yes, that was how it was. Crazy, right?


My mom kept reminding me to continue fighting and then placed a small silver crucifix on my hand and I never let go of it. I held it in my hand, in between my palm every time, any time and all the time.


My “I’m going insane. I’m going insane.” chant became “On Sunday. On Sunday.” I was looking forward to Easter Sunday. I was counting the days until Easter Sunday and I don’t know why, I just want it to be Easter Sunday already.

Easter Sunday finally arrived, nothing special happened to me. I still don’t know why I was excited for it to arrive. Still, I was happy. That’s all.

A very very very AMAZING thing happened the next day! I felt so good and while I was having my breakfast, I cheerfully told my mom that we’ll get better! “I will get better! You will get better!” and then my grandma came inside the house and I told her that she will get better too. With full of joy and excitement, I kept on saying “We will all get better!”

After a while, I told my mom, “Life must go on.” that I will give my best in everything. I can still do a lot of things despite my disabilities.

JESUS LIVES
and He brought my dying spirit back to life!



images from google




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