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Tuesday, March 27, 2012

Let's watch Kenneth Baladjay on Reel Time (QTV)



-from my column No reason not to be joyful:
"Kenneth, 12 [he's now 13], is suffering from Morquio syndrome. It is a metabolic disorder wherein he inherited defective genes from his parents. He manifests abnormal development of bones including a bell-shaped chest with ribs flared out at the bottom, coarse facial features, large head, widely spaced teeth, loss of nerve functions below the neck, etc. He is hooked to a ventilator 24/7 for almost a decade now. Yet, Kenneth always wears a bright smile despite the difficulties. He excels in solving math problems and creates his own artworks. I always remember our second meeting during my gift-giving at PGH. Kenneth handed me a letter that he personally wrote and I was so touched! Even though he is in a difficult pain, he smiles a lot, spreading joy to everyone. At a young very young age, he already knows about faith and optimism, and that is what I love about Kenneth most."
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I am still in contact w/ Kenneth up until now and he is still the jolly and strong child that we've met during the 1st time in 2007



6 comments:

  1. any update about kenneth's latest status or condition???

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  2. Hi Jessie! I get to chat and exchange text messages with kenneth every so often. The last time I got to talk with him was last week and he is doing great; cheerful as always like he's not in that condition. Anyway, his mom is on facebook and kenneth is often using it as well. Just search Marites Baladjay :)

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    1. Hello Kcat! I'm a nurse currently enrolled in my masters, and I'm about to do a presentation regarding the rare endocrine and metabolic diseases present in the Philippines. Fortunately, I was able to watch the Reel Time episode featuring Kenneth and I became really interested in his case. So since you seem to be well acquainted with him, can you tell me a bit on how he first manifested with his sickness, if you know? And what was it that prompted the family to seek medical attention? I hope you can reply very soon. :) Thank you! I hope you are doing well, too!

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    2. Hi Kcat! I am a nurse currently enrolled in my masters, and I am about to do a presentation regarding rare metabolic and endocrine diseases in the Philippines. Fortunately, I have seen the episode featuring Kenneth and I was deeply interested in his case. That's why I searched all over the net and came across your blog. :) Since you seem to be well acquainted with him, may I ask if you know how he began with his disease manifestations? And what was it that prompted his family to seek medical attention? .. I hope you could reply soon. I would appreciate it very much! Thank you, and I hope you are doing fine as well. :)

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    3. Hi Renee! Can you email me at kcatyarza@yahoo.com and I could send you kenneth's contact details so that you can have your questions directly answered by kenneth's family.

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  3. Ok.That's great to hear. =)..Im hoping to meet him and give whatever help I can give to him. =).haha.anyway.Thank you and I hope you are doing great also.God bless.

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