-from my column No reason not to be joyful:
"Kenneth, 12 [he's now 13], is suffering from Morquio syndrome. It is a metabolic disorder wherein he inherited defective genes from his parents. He manifests abnormal development of bones including a bell-shaped chest with ribs flared out at the bottom, coarse facial features, large head, widely spaced teeth, loss of nerve functions below the neck, etc. He is hooked to a ventilator 24/7 for almost a decade now. Yet, Kenneth always wears a bright smile despite the difficulties. He excels in solving math problems and creates his own artworks. I always remember our second meeting during my gift-giving at PGH. Kenneth handed me a letter that he personally wrote and I was so touched! Even though he is in a difficult pain, he smiles a lot, spreading joy to everyone. At a young very young age, he already knows about faith and optimism, and that is what I love about Kenneth most."
-----I am still in contact w/ Kenneth up until now and he is still the jolly and strong child that we've met during the 1st time in 2007